Back row from left: Anthony Zimba, Charles Begley, Emilio Perucca, Raidah Al-Baradie, Nico Moshé, Sam Wiebe and Carlos Acevedo.
Front row: Mike Glynn, Tarun Dua, Helen Cross, Hanneke de Boer and Shichuo Li.
Launch of Global Campaign Task Force
During a meeting, in October 2009 of the IBE and ILAE Presidents in Geneva with the WHO leadership, the future direction of the Global Campaign and potential future activities were discussed. All agreed that for the Campaign to maintain its current success and aim for an expansion in activities, more hands on deck” would be imperative. As a result of these discussions, the IBE and ILAE Presidents decided to establish a Global Campaign Task Force to help in achieving this goal.
It was agreed that it was imperative that members appointed to the Task Force would be representing their respective regions. Helen Cross from the UK and Shichuo Li from China acted invitations to act as co-chairs of the Task Force and the following were appointed as members:
- Carlos Acevedo. Chile: representing Latin America
- Raida Al Baradie, Saudi Arabia: representing the Eastern Mediterranean Region
- Charles Begley, USA: representing North America
- Anthony Zimba, Zambia: representing the African Region
Helen Cross would represent Europe and Shichuo Li will represent Asia & Oceania.
Both Presidents, Tarun Dua (WHO), Emilio Perucca (Treasurer ILAE), and Sam Wiebe (Secretary General ILAE) would serve as ex-officio members, whilst Hanneke de Boer, as the Coordinator of the Campaign, would participate in all meetings.
Each member of the Task Force was asked appoint a young person from their respective regions to assist them with the work involved, for the duration of one year, and if proven to be successful, for the remainder of the term of the Task Force. This would ensure an in-built mechanism for capacity building.
One of the first charges of the Task Force would be the development of a strategic plan for the Campaign to be ready for discussion by the IBE International Executive Committee and the ILAE Executive Committee when they would meet jointly at the end of March 2010.
The following goals were identified for the Task Force:
To improve the visibility of epilepsy and the activities of the Global Campaign in all countries by
- Developing a central message
- Defining target audiences
- Developing and implementing strategies for improved communication.
To promote activities at country and regional level to enhance epilepsy projects of the Global Campaign Against Epilepsy, including
- Promotion of demonstration projects, formulation of guidelines and collation of data on sustainability
- Completion and dissemination of legislation proposals
- Completion and dissemination of reports.
To assess and strengthen health care systems for epilepsy by better understanding of the conception model of the coverage gap, including the treatment and knowledge gap, measuring the burden of epilepsy and methods for conducting country resource assessments.
- To increase partnerships and collaboration with other organisations
- Participation of ILAE, IBE and WHO
- Partnerships with other international organisations and academic institutions
- Identification of other partners
Develop the necessary infrastructure and resources to achieve expanded goals of the Campaign.